Oct 19 - Discharge soon!

We were told a week ago that THIS FRIDAY, Oct 21, would be Josh's discharge date, meaning we could take Josh home and transfer to outpatient care! But apparently, his physical therapist says he's ready to leave sooner!  So we'll meet with a doctor tomorrow to have "formal education" on everything we need to know to care for him on our own.  Then, depending on how we feel, we get to decide if we're ready to take him home tomorrow or Friday.  

The end of Joshua's inpatient hospital stay is fast-approaching! 🙌


Of course, this means many changes, much learning and research to get the best care we can.  And more work on Joshua's end plus many more appointments. We're not out of the woods yet.  Every week seems to bring its own ups and downs, challenges and triumphs.  But we're elated to see such continual progress.  Josh has worked hard and has much to be proud of!  His therapists and nurses simply love him, his positive attitude, witty remarks, sometimes teenage punk attitude, good efforts, and accomplishments!

Comments

Post a Comment

Popular posts from this blog

Joshua's Stroke Overview

Image
Our oldest son, Joshua (16), had a stroke on Monday, October 3rd, at school.  He called me saying he was partially paralyzed so I took him to Layton Hospital ER.  After many tests, he was taken to Primary Children's Hospital and Rodney rode along. I met them later in an ER room, where a neurologist had told Rodney that Josh had a good chance of an eventual nearly full, even 99%, recovery. We were soon transferred to the ICU, where he stayed for over a day and had many more tests and meetings with doctors and specialists. After ruling out heart issues and from findings on an MRI plus a clue from my dr. brother, it was discovered that he has a genetic condition called NF1 or neurofibromatosis, which can cause strokes.  In the long run, aspirin will hopefully keep future strokes at bay.  But many questions are yet to be answered and treatments yet to be discovered. We've been told he'll stay at least a few more days or until he can stand and walk, with support.  Th...
Read more

HOME! (10/20)

Image
Joshua was discharged from the hospital October 20th, a Thursday evening.  He had a moment of anxiety, leaving such a safe place and a whole other world he got used to living in.  After talking with me, a nurse, and Rodney, he felt better.  At least enough to give it a go.  He hasn't looked back. Ready to go. Trips to the car Wheeling himself out.  He could walk well in his brace at this point but he was tired and we wanted to be safe. Walking the grandparents' puppy.  Great therapy! Adjustments to home and a different kind of busyness (closer to regular busy family life) have pursued.  Everyone's doing well.  Outpatient therapy and education have been the recent bigger changes. Again, thank you for your generosity, thoughts, and love! 💜 
Read more

1/2/2023 General Josh Update

Image
Tomorrow marks 3 months since Joshua's stroke happened.  Time feels strange in important/unique/traumatic times of life, especially the first days and weeks.  It feels more normal now. Physically -  Joshua's doing very well.  His physical therapy went from 2x/week in November to 1x/week in December to 2x/month in January.  He passed his driver evaluation last week so HE CAN DRIVE again!   This feels huge for him and us.   Driving again will hopefully help his spirits, as he'll be able to get himself to and from the gym, friends, etc. at his own convenience. Occupational Therapy ( OT ) - He basically " graduated " in late November.  He says the sensation on the right side feels different than the left side, although he can feel everything.  He says it's hard to explain. Speech - He was finally able to get in for an evaluation a few weeks ago, after he got sick the day of the first one and it had to be delayed a month.  He starts hi...
Read more