Visits & OUTINGS!


Joshua has had multiple visits and outings, at this point.  The first outing started with the gym for therapy last Thurs or Friday.  Then we were told about the family/ride pass.  We thought it would only be Saturday afternoons/evenings and Sundays because there's no therapy then.  But he's had more opportunities than that already!  His first visits were from a good friend, two of his grandparents, and his siblings.  Since those first visits...

Saturday

YM/AP group visited in the morning


Uncle Nano/Nate visited for much of the day and evening.  His cousin and sister visited that evening too.  


Sunday

My cousin, Brady, was able to visit in the morning.

Church, Sacrament Meeting.  We heard that church here is something else, like it's condensed in both time and spirit.  We found that to be true from our first time going.  It really put our experience into perspective.  I think it profoundly impacted all three of us (Rodney, Joshua, and me).  Something about listening to young patients and parents gives a perspective shift.  I also got to go to a Relief Society meeting and that was also wonderful.  Ever since Sunday, I feel like I'm mostly just seeing the blessings in all of this.  There are so many!  Joshua's seminary teacher texted, "One thing I've learned is that the Lord will squeeze every good thing out of even the hardest most difficult things!"  I'm starting to see that.





Visit home!  We enjoyed much visiting, food, and even our traditional Sunday Family Walk.  The wheelchair made a fun change.  Move over, Savannah's stroller!  There's a new set of wheels in town! :)










Monday

Teen Room (every day this week so far) 🏒

Tuesday

JAZZ Game! 🏀 The hospital gave us and another 16yo neuro patient tickets to a pre-season game.  We knew they would be wheelchair accessible.  They ended up being in a skybox with food and drinks.  So fun!

Wednesday

Out to Cafe Rio lunch for therapy with that other neuro patient/friend.🍽


We expect to take him out on Saturday afternoon/evening then again to church and home on Sunday.


Aaannnnd... they gave us an expected date of when he'll get to leave in-patient rehab and the hospital...

Friday, October 21st.  If all goes well, we should be out in just over a week!  That's faster than we expected so that's great news.  

Comments

Post a Comment

Popular posts from this blog

Joshua's Stroke Overview

Image
Our oldest son, Joshua (16), had a stroke on Monday, October 3rd, at school.  He called me saying he was partially paralyzed so I took him to Layton Hospital ER.  After many tests, he was taken to Primary Children's Hospital and Rodney rode along. I met them later in an ER room, where a neurologist had told Rodney that Josh had a good chance of an eventual nearly full, even 99%, recovery. We were soon transferred to the ICU, where he stayed for over a day and had many more tests and meetings with doctors and specialists. After ruling out heart issues and from findings on an MRI plus a clue from my dr. brother, it was discovered that he has a genetic condition called NF1 or neurofibromatosis, which can cause strokes.  In the long run, aspirin will hopefully keep future strokes at bay.  But many questions are yet to be answered and treatments yet to be discovered. We've been told he'll stay at least a few more days or until he can stand and walk, with support.  Th...
Read more

HOME! (10/20)

Image
Joshua was discharged from the hospital October 20th, a Thursday evening.  He had a moment of anxiety, leaving such a safe place and a whole other world he got used to living in.  After talking with me, a nurse, and Rodney, he felt better.  At least enough to give it a go.  He hasn't looked back. Ready to go. Trips to the car Wheeling himself out.  He could walk well in his brace at this point but he was tired and we wanted to be safe. Walking the grandparents' puppy.  Great therapy! Adjustments to home and a different kind of busyness (closer to regular busy family life) have pursued.  Everyone's doing well.  Outpatient therapy and education have been the recent bigger changes. Again, thank you for your generosity, thoughts, and love! 💜 
Read more

1/2/2023 General Josh Update

Image
Tomorrow marks 3 months since Joshua's stroke happened.  Time feels strange in important/unique/traumatic times of life, especially the first days and weeks.  It feels more normal now. Physically -  Joshua's doing very well.  His physical therapy went from 2x/week in November to 1x/week in December to 2x/month in January.  He passed his driver evaluation last week so HE CAN DRIVE again!   This feels huge for him and us.   Driving again will hopefully help his spirits, as he'll be able to get himself to and from the gym, friends, etc. at his own convenience. Occupational Therapy ( OT ) - He basically " graduated " in late November.  He says the sensation on the right side feels different than the left side, although he can feel everything.  He says it's hard to explain. Speech - He was finally able to get in for an evaluation a few weeks ago, after he got sick the day of the first one and it had to be delayed a month.  He starts hi...
Read more